THIS IS A READ-ONLY ARCHIVE FROM THE SORABJI.COM MESSAGE BOARDS (1995-2016). |
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He's been 100% deaf since birth, and has been researching it for a few years. The technology has finally gotten to the point that he feels it is time for a new adventure. The surgery will take 3 - 4 hours, and then he'll spend the night in the hospital. About 4 weeks from now, he will get the external components (Computer gear). He tells me that the top 3 things that he wants to hear are 1)Waterfalls 2)Birds 3)The cats At a minimum, it will be a couple of years before he is able to understand spoken language, if at all. He understands that, and is fine with it. He told me that even if he is just able to hear environmental sounds, he'll be happy. His whole life is going to change. So is mine. |
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Limbaugh. |
that's the kind of thing that blows my mind just to think about, like trying to imagine a colour that hasn't been discovered yet. I guess the first hours after it starts to work would be scary as hell! music! for the first time ever! !!!!!!!!! i'm going to need a couple days to get over this. that's amazing, Christopher. |
and being amazed. |
About 8:30 the surgical nurse came and told us that we would need to wait a little longer, because the Cochlear device hadn't arrived from Fed-Ex yet. That raised some eyebrows, and Len wanted to know if they planned on testing it before putting it into his head. Can't blame him for wanting to kick the tires, as it were. they assured us that that testing would be done. About 15 minutes later, the nurse and the anesthesiologist returned with the news that it was time to get started. They pumped him up with something like liquid valium, and he got pretty high. For some reason, he told us that when he was a teenager, a bunch of his friends took him to a Yes concert, where he smoked a lot of pot. I had never heard this before. The anesthesiologist told me that he would have no recollection of it, so it is something that I will drag up from the past at an appropriate time. A few minutes later, they were carting him off to surgery. I kissed him goodbye, he signed that he loved me, and he was off. I sat in the surgical waiting area most of the day. The surgical team sent word to me around 10 that the procedure was underway. About 3 hours later, the surgeon came down to talk to me. He told me that everything had gone beautifully. The biggest concern with doing a cochlear implant is that the facial nerve might get damaged, resulting in tics and horrific drooping. None of that happened, thank God, but I wasn't really too worried. UCSF pioneered the procedure, so I guess they know what they're doing. A few hours after surgery, I was called up to the recovery room, because no one knew how to sign. They wanted to know if he was in pain, or nauseous. Len was a wreck. He had a big dome-like bandage covering the left side of his head, and was really, really out of it, but I managed to drag out of him that he wanted pain killers. He also told me he was hungry, but I think he was hallucinating. They drugged him up, he fell asleep again, and I went back down to wait some more. After he had been in the recovery room for 7 hours, I went to see him again, and he was much more coherent. And cranky. He was still very sleepy, but much more together. The nurse told me that his room was being prepared, and that he'd be moved up to a private room in a little while. Again, I was asked to accompany him when they moved him, so I could interpret. He was in a fair amount of pain, and was really thirsty, and even crankier than before. He was very happy to use the bathroom, and got in and out under his own steam. After they gave him his meds, he fell asleep again, and I headed home around 8:30pm. An incrediably long day, as you can imagine. I'm looking forward to getting him home tomorrow. Now he will heal for a month, and in the third week of February, he will have his activation day. The folks at UCSF were really cool; I recommend them for ALL of your bionic augmentation needs! What a trip... It's really starting to feel like the 21st Century. |
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You made my day. I can only imagine the plethora of emotions Len has gone through,contemplating this surgery. You mentioned aesthetics. How does this go into play? After reading your inspirational story,and your high recommendation of UCSF, I have decided I would like some new,bionic tits,and will consider them for this procedure :) |
*SPROING* |
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Just curious, is this covered under your insurance policy? I've considered laser surgery to my eyes, but im not sure my HMO plan covers that. |
It's scheduled for tomorrow. |
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Recently on t.v. I've seen so many deaf people speaking out against the cochlear implants -- even for their children -- & acting as though deafness were some kind of genetic advantage that one shd preserve at all costs. Which makes no sense to me. I'm glad the deaf have created their own culture & are proud of it. But if the means to allow the deaf to hear are out there/they have no right to discourage anyone from getting the chance to hear thru the cochlear implant. I don't understand why so many deaf people are so threated by it... I used to know Dr. Elizabeth Ying/who was involved in the early stages of developing the implant in NY. I can't believe it's become a reality in less than 20 years. And I'm glad to see there are deaf people who think the implant is a great thing. |
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Language, on the neurological level, is generally studied as it relates to the auditory centers of the brain. However, studying the brains of people who use sign language as their sole form of communication gives neurologists a novel, and therefore highly valuable, perspective on the processing of language and the development of language skills. However, aside from that, I can see why some people in the deaf community are opposed to the use of the implant in children. Because of the nature of the disability, the deaf community is very insular. They are naturally cut off from the rest of society and so have developed their own unique culture. Giving every deaf child an implant that would allow them to integrate into the rest of society would destroy that culture. For people who have grown up in the deaf community it's akin to eradicating their heritage, similar to the destruction of Native American and other aboriginal societies by Western influence. So, maybe you can see why there's resistance to change... |
so its best not to look. |
ability to hear is something that shouldn't be done. If a deaf person wants to hear, so be it. If they want to remain deaf, so be it. But to deny someone the chance because a subculture has grown up around being deaf, well, that's crap. It's like refusing to teach your kids english when you live in freaking Iowa. I'm sorry that medical science may one day eliminate the deaf subculture, but too bad. I think being able to hear birds, the wind in the trees and the laughter of your children would make up for it. I respect the subculture, but this is different than Native american cultures being wiped out, and if they can't see that, well, they're wrong. I usually don't say things like that, but I believe this to be true. I don't know why I feel so strongly about it, maybe I just don't like that some people would cheat themselves and others out of a wonderful experience because it would be different from what they have always known. |
Why go through your whole life living with your disability? You were born short, but you don't have to always be that way. Why not stand tall with people like me, and enjoy the advantages being tall brings? |
"For people who have grown up in the deaf community it's akin to eradicating their heritage, similar to the destruction of Native American and other aboriginal societies by Western influence." you know thats a load of shit antigone. |
But why am I arguing? (Well, I just wanted to call someone a behemoth.) I think anything that can make the deaf hear/the blind see/the lame walk/etc is a good thing. |
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only that antigone's comparison, the destruction of Native American culture, was a load of shit. i think the crux of the matter, as you say christopher, inserting the implant into deaf children....is really up to the parents and none of the deaf communities business. What about braces and other dental proceedures? Sure much of it is cosmetic, but some of it isnt. Circumcision falls into this category as well. Hell, should we let a child who needs glasses go until he or she is 18 and they can decide for themselves if they need glasses? My mommade the decision for me to be fitted with glasses when i was a child because i was having problems seeing the board in class and getting frequent headaches because i was straining my eyes. Would the blind community argue that is wrong? Im not sure anyone was saying the deaf are missing opportunities or being denied access to being successful individuals in our society, but the deaf are missing out on many of the pleasures the rest of us enjoy and if you have a chance to bring one of your 5th senses closer to normal i can't imagine why anyone wouldn't want it, assuming its a safe proceedure. Also, considering the implant can be removed at the patients discresion, im failing to see what all the hubbub is about. |
Yes, you can't imagine. That says quite a bit right there. Too bad there isn't a prosthetic for that. Yet. Will you get in line for one when it's invented, patrick? |
Why, Rhiannon, it would make you a better person, more like me, more like the rest of us tall people. Because we all know that people like us are better people. For goodness sake, why wouldn't you want to be tall, male, muscular, and good looking in this society? I mean, really. Be He, Moth. |
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and something else just popped in my mind...is deaf subculture exclusive? sure the attribute that may bring them together is but if one grew up in the hearing impaired subculture had the implant, are you saying christopher, antigone, they would all of sudden be excluded? all ties would be severed, the connection would be lost? |
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i've seen it twice now when the people refered to were making perfect sense. so much for subculture. |
My sister-in-law is deaf and has opted not to have a CI, even though it may mean being able to hear her children speak. Among her reasons is the acceptance of her deafness as a defining part of her personality. That's her choice. You would need to spend 30 years inside the peacefulness of her world before you can understand her unwillingness to part with it. |
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cat this was made clear earlier, in one of chris's posts. i've understood this perfectly. "You are presupposing that deaf and blind people exist in a constant state of lack, or suffering" not at all christopher. the fact remains they are without one of the 5 senses. it is indeed preposterous but not of my opinion. I am fascinated what the human mind and body can do when one loses sight and/or hearing. i don't mean anything negative by the term "subculture" christopher. its not a negative word to me. it just means something outside the mainstream. people who are blind and deaf, are outside the mainstream, are they not? you seem to imply they are. i believe, people, i ultimately supported a persons CHOICE....in one of my first posts of this, i said it should be somone's choice, and i found the fact that "a handful that would turn their backs on those deaf folks who would choose to get implanted". I'm also surprised anyone wouldn't opt to look into the medical measures to correct this. Personally i'd be so damn curious. Whatever, why am I draqwn into this? I could careless if a blind man chooses not to see. I find it ridiculous one blind man would turn on his blind best friend because he chose to see. Christopher, cat whomever else, read my "3:29" post and tell me exactly where this insensitivy or ignornace is? I still think antigone's comparison to the destruction of a whole race completely over the top. anf fuck off cat. seriously. ok? ok? just fuck the hell off. |
do you have any idea whats its like to....say, make a lemon cake, you follow the instructions verbatum and even add some of your own touches, and every god damn time, it taste like shit? bear with me im speaking "met-aphor-ic-ally". Over and over and over and over, your dinner guests tell you it tastes nothing like lemon, in fact its somewhat revolting, and for the life of you, you cannot possibly figure out HOW and WHY, you do everything you're supposed to do and more and it N E V E R comes out right? You don't ever intend for it to taste like ass cake, but it just does? have you ever in your life experienced such ridiculous and repeat frustration, disapointment and hurt? I don't know enough about you to make such an insult. I suppose i spread my legs wide on this board, simply because im a social, needy person. Regardless, everytime someone says im "ignorant", im an "idiot" thats exactly how i feel. how the fuck I'm drawn into this and drew such a fucking insult is beyond me. Nate you can bite me too, ok? The other post you reference nate, salty completely misread my post, entirely. maybe im the fool and someone like you or antigone is playing the role of salty and is getting your hard earned rocks off on such. whatever. Isn't my inability to understand why someone wouldn't choose to hear, say Miles Davis or your lover's "sigh"s, when they've been deprived all their life....isn't that just the same as someone who chooses not to obtain the ability to hear because of the wonderful peace, as you say cat, they've enjoyed in deafness? I don't know what its like to be deaf, anymore than they know what its like to hear. |
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Maybe it's because, while most others on this thread are presenting arguments and debate, you're saying "this is utter bullshit!" Of course, I could be wrong. "Isn't my inability to understand ...[snip]... just the same as someone who chooses not to obtain the ability to hear..." Potentially, yes, but not necessarily. Someone choosing not to hear may be doing it from a lack of understanding, but that doesn't have to be the case. Maybe they feel like they'd be losing something essential if they gained the ability to hear. Maybe they don't wan Regardless, assuming that others make decisions for the same reasons you do, or think the same way you do, is usually wrong from the start. Other people hardly ever think like you do. That's why you have to ask questions, watch with an open heart and mind, and try to refrain from saying "this is utter bullshit!" |
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have you ever considered learning from your experiences instead of repeating them? if you're having trouble communicating, maybe it's you that has the problem. maybe you're not very good at communicating. maybe it's not everyone else's fault. you can develop better communications skills if you work at it. or you can pretend that everyone's out to hurt your feelings. personally, i don't give a shit. |
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I lisp a little with my new tongue. |
You've shown a distinct lack of logic on this thread, even when someone like Christopher is presenting you with facts from personal experience. It's bloody ironic that you're busy proclaiming deaf people should want to hear, while refusing to listen yourself. I'm tired of your overly sensitive behaviour and unimpressed with your whining. You wanna debate with the big kids? Then get off the short fucking bus. I was going to temper this post with some positive crap about how I'm sure you have lots to offer etc etc, but I'm too busy fucking myself. |
"I feel that children under the age of 5 or so, should be taught ASL, and be offered the option of implantation afterwards." This would probably deprive the implantee the opportunity to completely adapt to the CI. During brain development there are several "critical periods" during which the nervous system adapts itself to process basic sensory stimuli. The auditory critical period is from 0-2 years of age, so delaying use of a CI until age 5 would make it far less effective... |
That said, I think that it totally makes sense that the deaf community is against them, for previously stated reasons (namely the destruction of a culture). I also think that, while you can call it close-minded of certain people on the board to be unable to understand this, it may be equally close-minded of the deaf community to be running from the new technological improvements. Maybe this hasn't been said out of pity for the death community. But why pity them? They have a flourishing culture and everything else to make them human, yet we are talking about them like invalids who dont deserve criticism. I'm not saying that it is right or wrong for them to shy away from CIs (and the only reason my language implies it is wrong is that i do want to bring that up as an option). I just think that y'all are being a bit harsh on patrick for close-mindedness, when thats just human. Maybe i'm just a kid too, like you accuse Patrick of being, but i hope you'll at least listen and try to understand what i'm saying. |
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yes, i may not be able to take what i've dished out at times. there, how's that for your sense of superiority. i admit it. does that rub your cooch the right way? i considered you a friend, but your post was not of someone who shares the same respect. i wouldn't consider calling nate, agatha,sem, spider or dave..for example..."idiots" or "ignorant", despite their opinions. i consider them friends, and while I might call a POV of theirs "bullshit" "idiotic" I would never call them ignorant. Salty, as far as I'm concerned was a stranger. I don't always bother seeing if its someone else under another name. My respect is earned not given out. No one is whining, Thats usually your job. I just took your comment quite personally, from someone i used to consider a friend. last and finally about this point. I think i've paid christopher all the respect due. I'll repeat...my use of "subculture" was never intended as a negative. By definition, its not a negative word. The only illogic or dismay i've expressed is a disbelief that deaf would actually turn their backs on technology and on someone who took advantage of such technology. I've never said anything to the converse that its a personal choice to have such a proceedure and all are free to make it. I'm entirely capable of understanding his points, and i've read all of them entirely. You seem to think I don't understand things I understand clearly. Articulation is a problem for me, and you know, i have all kinds of self-hate, guilt and issues with that. Thats fine, thats my problem and I hold no one responsible for. People I consider my friends don't rub my nose in it however. I've taken forms of verbal abuse from people close to me all my life and yes, they paid a dear price for it. Its not just a matter of having my opinions or POVs called down, thats fine. But you know, to insult my entire character for it, you're an asshole. A lonely lonely bitter, asshole cat. Debating with the big kids doens't include calling an entire being "ignorant". thats actually debating with the little kids. Since I've come around here, i've never ever questioned my being, my existance, my worth as much. There's a love/hate aspect to that. At the same time, I wonder why I waste any fucking time at all on this ridiculous little clic. Rant on, drop more lines to stroke your ridiculous sense of superiority cat, reduce me to rubble if you like it doesnt much matter now. |
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Fucking non-starters are pulling society apart and ruining the very fabric of our civilisation. |
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Christopher - Good to hear (heh) he's doing OK. When does he get to turn it on? I hope you'll keep us updated on his progress. |
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fuck up, fucktard |
run a spellchecker on that, dear. |
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Have you ever tried to make an ass cake? Do you know how hard it is to get fresh shit around here? |
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Only the deaf culture leaders who fear loosing their power or exclusivity care about the fall of their culture. For the others it surely must be a more personal issue. Do they run the risks of surgery? Do they really want to hear? etc. etc. For the children these are decissions better left to their parents and their doctors. A "culture's" survival has nothing to do with this. And, should have nothing to do with this. It is an issue to be handled on an individual basis. |
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dave is there any chance you can make a post without referencing your ass? My dreams appear to be quite impressionable these days, and I fear somehow, your pudding reference will end up in my dreams motherfucker. |
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2)Birds 3)The cats pay attention patty |
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I'm working right now, so I will continue this later, and let everyone know what his first few days were like. |
i'm really excited for him. |
Programming your own auditory hallucinations... Having your own built in multi channel equalizer... Uber c00l! |
It will be cool to see how this progresses. |
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The first day of his activation, all the high frequency sounds were tuned really low, because Len was extra sensitive to these sounds. Not surprising since he has never heard them. He told me that speech sounded like hammering...a monosyllabic "bap bap bap". He could not differentiate between my voice or his mothers, but knew that someone was talking. He had three programs to test out: SAS(all the electrodes are activated at the same time),CIS ( Continuous Interleaved Sampler A train of pulses is delivered to electrodes in a non-overlapping way. It stimulates one channel at a time.), and PPS (Paired Pulsatile Sampler stimulates two channels at a time). The first one that he tried out was CIS, and he seemed to have the best results with this. PPS seemed largely the same, but SAS was overwhelmingly awful for some reason. He may need to work up to this strategy, or it may not be what works for him. Time will tell. It was pretty primitive the first day, and everything was just weird. He got tired really early, and went to bed. The audiologist told us to expect this for the first 3 days or so. Day 2, he went back to UCSF with his Mom, but I had to work. I really wish I had been there, because when I got home from work, he was able to hear A LOT more than the day before. They had amped up the high end levels, and adjusted everything again. He can now hear the number of syllables in each word, discern ALL of the vowel sounds, and hear the difference between SH - CH and TH sounds. He could hear the cats much more now (I picked up the Poomster and squeeeeeezed her until she made a nice variety of squeeking sounds). He was able to hear the cats water fountain, and the sound of the microwave oven. He didn't hear the beep at the end, but he knew when it was finished. Again, it was an exhausting day, and he hit the sack pretty early. Yesterday, we went to Carmel, and we stopped by the ocean. He was really happy to be able to hear it, but that wasn't the high point of his day. That happened when we were leaving one of those high priced antique shops in town. there were a bunch of bells tied to the door, and when he swung it open they all started ringing. He stood there, swinging the door back and forth, and started laughing. The shop keeper probably thought he was nuts. He wants to get some wind chimes for our backyard, so we'll proabably do that this week. Today he went back to work for the first time, so I'm sure he'll have a story or two when he gets home. I'm amazed at how much progress he is already making. He will use the current set of programs for a month, and then will return to UCSF for further programming. It is estimated that within 3 months, a new programming strategy will be available. This is currently in FDA trials, and will utilize all 16 electrodes independantly. It is over 600 times more powerful than any of the current sound strategies, and will deliver an incredibly high definition sound quality. Currently the programs that he is using deliver about 14000 stimulations a second. The new strategy delivers in excess of 80,000. The cochlear implant itself is capable of delivering 10 MILLION stimulations per second, so we are at the begining of an incredible revolution in this technology. The advanced programming strategies are only just begining to take advantage of the hardwares capability. It's an exciting time, and a lot of work lies ahead. He will be working with a speech therapist to help him learn to listen and understand speech. Since he is already highly verbal (or oral, but I think that sounds soooo dirty), he should make strides fairly quickly with the help of a therapist. So far, the only "Down Side" was that the microphone kept falling off because his hair is still so short over the incision, that the bristles push the mic away from his skin. We fixed that with some double sided photo tape! I kid you not... |
governments screwing the people hand in hand with the corporations, it's stuff like this that remind you what it's all about. I will say right now that I'm really looking forward to your partner's encounters with music, Christopher. I think I recall reading once that some deaf folks are really into bass- heavy music because they can feel the rhthym through the vibrations. Beethoven was a favorite, I think. |
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I realize that I have the power to shape his musical taste for the rest of his life, so I am keeping him out of the Dead Kennedy's section. We went to the bookstore tonight, where we bought one of these baby book and audio tape packs. They're great. You get teletubbies repeating the same word over and over. Frightening to you and I perhaps, but its supposed to be really good for language introduction. We will see... Well, its been a week. So far things are good. Its now that I see the monumental amount of work that is coming. Yikes. |
How about reggae? |