Multiple Sclerosis Bulletin Boards


sorabji.com: The Stalking Post: Multiple Sclerosis Bulletin Boards
By The Watcher on Friday, January 18, 2002 - 05:53 pm:


By droopy on Friday, January 18, 2002 - 07:52 pm:

    when i had a flea market stall a few years back, there was a guy who'd come in every so often who had MS. he'd come in with son, who was about 9 or so. he walked with a cane, the guy, and he was really thin and had a rubbery way of walking. that's the only way i can describe it. his whole body had a rubbery quality to it and he took long strides when he walked and dipped a little with each one. if you just saw him from the waist up while he walked (like from the other side of one of the low partitions that separated one aisle from another) he would bob up and down as he went along.

    i'd say "hi" and he'd say "hi" and sometimes he'd buy something from me. then one day he sat down with me at my stand and asked me about being in a wheelchair. his MS had progressed far enough that he was going to be a candidate for one pretty soon. i tried to be as positive about being in a chair as i could realistically be. then one day he came by and said his insurance company wouldn't pay for a wheelchair because he had a "pre-existing condition." my manual wheelchair was about $1500, i think; he was going to need an electric one, so that's probably going to be in the $2000 range or more for all i know. or way more. i gave him as many ideas as i could come up with. i never saw him again after that.

    you have an MS patient in your life, the watcher?


By heather on Friday, January 18, 2002 - 08:32 pm:

    my grandmother got a hospital bed [paid for by insurance] when my grandfather's alzheimers progressed. he died ten years ago. when she tried to send it back they said that it had already been paid for and no one came to get it. she doesn't use it but she still has it. the swing/bar/sling thingy is pretty fun.


By semillama on Friday, January 18, 2002 - 09:47 pm:

    I can see you in that with a big grin on your
    face, although I am uncertainthat I ever saw a
    big grin on your face.

    Y'know, sorabjifest was a GOOD idea, and I
    still think of it as a high point 0f '01.

    way to change the subject, sem, you drunk
    fuck.

    hee.

    we need to get toghether (us in general) and
    fart around more, I especially think that a
    carload containing me, Heather, Nate and
    Sarah in particular, bopping down Woodward
    Avenue in Detroit with Sly and the Family
    Stone on the radio,ona bright sunny spring
    day in May, that would be pretty damn cool.


By heather on Saturday, January 19, 2002 - 10:50 am:

    nate definitely needs some 'detroit appreciation' introduction


By Nate on Saturday, January 19, 2002 - 07:42 pm:

    yes, please, start anytime.


By J on Monday, January 21, 2002 - 09:19 am:

    I think Watcher had mentioned his wife has M.S.


By patrick on Tuesday, January 22, 2002 - 12:06 pm:

    could i see a red wings game if it isnt sold out for the 1000th time in a row? motherfuckers sell out here too. I cant get tix to the april redwing/king game.

    fucking sellouts


By The Watcher on Tuesday, January 22, 2002 - 03:59 pm:

    You are absolutly correct J.

    My wife does have MS.


By Dougie on Tuesday, January 22, 2002 - 06:16 pm:

    I'm sorry to hear that Watcher.


By The Watcher on Wednesday, January 23, 2002 - 03:28 pm:

    We all have our crosses to bare.

    I support her. And, she has the disease.


By The Watcher on Thursday, September 26, 2002 - 12:48 pm:

    Just thought I'd activate this thread for anyone new.


By kazoo on Thursday, September 26, 2002 - 12:51 pm:

    one of my best friends has MS. he doesn't talk about it much, but I visited a few of those sites after he told me.


By The Watcher on Thursday, September 26, 2002 - 12:58 pm:

    There really isn't much a MS patient can say.

    They're either feeling great one day and terrible the next.

    Or, like my wife simply slowly progress through the dissease. Each day a little bit worse than the last. With a few really bad days thrown in for good measure.