Below are a number of sites which have either bulletin boards and/or chat rooms specifically for MS patients and their care givers. http://www.msworld.org http://www.msaa.com http://www.msmoms.com http://venus.beseen.com http://www.geocities.com/klinks_html//ms http://www.mswatch.com http://www.mscentralsupport.com None of the above sites are nearly as fun or as free spirited as sorabji land. But, they do provide a valuable service. |
i'd say "hi" and he'd say "hi" and sometimes he'd buy something from me. then one day he sat down with me at my stand and asked me about being in a wheelchair. his MS had progressed far enough that he was going to be a candidate for one pretty soon. i tried to be as positive about being in a chair as i could realistically be. then one day he came by and said his insurance company wouldn't pay for a wheelchair because he had a "pre-existing condition." my manual wheelchair was about $1500, i think; he was going to need an electric one, so that's probably going to be in the $2000 range or more for all i know. or way more. i gave him as many ideas as i could come up with. i never saw him again after that. you have an MS patient in your life, the watcher? |
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face, although I am uncertainthat I ever saw a big grin on your face. Y'know, sorabjifest was a GOOD idea, and I still think of it as a high point 0f '01. way to change the subject, sem, you drunk fuck. hee. we need to get toghether (us in general) and fart around more, I especially think that a carload containing me, Heather, Nate and Sarah in particular, bopping down Woodward Avenue in Detroit with Sly and the Family Stone on the radio,ona bright sunny spring day in May, that would be pretty damn cool. |
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fucking sellouts |
My wife does have MS. |
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I support her. And, she has the disease. |
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They're either feeling great one day and terrible the next. Or, like my wife simply slowly progress through the dissease. Each day a little bit worse than the last. With a few really bad days thrown in for good measure. |